The PKU (Phenylketonuria) Association of NSW Inc is a voluntary support group of individuals and families living with phenylketonuria (PKU). Activities undertaken include:
Providing information and support to families affected by PKU;
Actively re-establishing contact with adults who have PKU and do not attend the Adult Metabolic Clinic
Supporting research into the treatment of PKU, including fundraising for the purpose of research into the treatment of PKU
By Lobbying Government bodies where appropriate
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