Fighting Blindness in inherited retinal eye disease by supporting:

  • Gene Therapy.  Human trials have taken place where young adults with only light/dark perception had healthy genes inserted and regained some sight. They were able to read part of an eye chart and negotiate an obstacle course. Trials are progressing for treatment on a larger scale.
  • Inherited Retinal Disease Register and DNA Bank – This is a national register and DNA bank  at the Sir Charles Gairdner Hospital in WA where eventually all those with inherited eye disease in Australia will be genotyped  so when a gene therapy becomes available  participants will be informed that a gene therapy is available for their eye condition. We are currently struggling to keep this going.
  • Stem cell therapy hopes to rebuild the damaged retina where gene therapy is not applicable.
  • Supply of equipment for the children of  retina Australia to help in their education such as whiteboard readers that beam back what is written or drawn to the child’s laptop where it can be saved or read in a font that can be read by the child.

Retina Australia (NSW) Inc

Retina Australia (NSW) Inc provides funds for research, information and peer support for those affected by inherited retinal eye diseases such as Retinitis Pigmentosa and like conditions such as Macular Degeneration.

$50  Enables blood to be taken for genotyping.

$100  Starts the genotyping process.

$500  Enables equipment to be purchased for the Children of Retina Australia.

$900  Enables the  identification of genes for future gene therapy of an individual.


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