1000 Steps for PWS 2012 has now finished

25 Nov 2012

What is Prader- Willi Syndrome (PWS)?

Prader-Willi Syndrome (PWS) is a rare genetic condition affecting Chromosone 15.  A person with PWS will typically have an obsession with food and eating along with learning delays, poor muscle tone and behavioural issues. 

There is currently NO CURE although research is being conducted around the world. 

Families must put in place strict management strategies with diet and exercise to assist with the PWS child, otherwise the child will become morbidly obese and experience complications from this including premature death.

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