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Batten Disease Association

The Batten Disease Association (Batten Disease Support & Research Assoc. Inc. Australian Chapter) aims to assist and support children affected by the fatal, incurable and genetic disorder, known as Batten Disease. We also support medical research and clinical trials directed toward finding a cure or slowing its progression in our affected children:
* To provide a parent communication network, information and emotional support to families of persons affected by Batten Disease;
* Act as a national registry for NCL researchers throughout the world and endeavour to support their work;
* Maximise the opportunities of persons affected by Batten disease;
* Educate all concerned about the special needs required;
* Fund important and necessary clinical trials and medical research into slowing its progression and hopefully, a cure.

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