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Australian Pompe Association Inc

The Australian Pompe Association is a patient support group for people suffering from the rare and debilitating Pompe Disease. Pompe disease is caused by a deficiency or total lack of the enzyme that breaks down excess glycogen which accumulates in the muscles. This results in severe muscle weakness and progressive muscle damage. The APA aims to provide support to Pompe patients, families and carers and ensure they have the most up to date information on Pompe disease and upcoming treatments and trials.

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